Monday, October 4, 2010

Day 6- Clarity!

Finally, a day that makes sense! Laura and I woke up early this morning to make sure we were here for rounds. Rounds consists of like 5 doctors and a rolling computer. Anyway, today finally after having the weekend to realize what all has been going on, we were able to come in loaded with clear and concise questions. I pulled the IEP meeting mentality, any of you spedies will understand, and said we will have a plan when this is done. So, plan...NG tube is coming out. The reason the NG tube was there was to suction the stomach. Overall, sure it has been suctioning, but it has also given her a yeast infection in her throat, so we are to the point where comfort has become more important in forms of tube out and more meds in. Also, the IV tube will be coming out. This was there for hydration and really was something that probably could have been out last Friday. The weekend really impacts things in the medical world...so yippee for Monday!! So...everything is stopping at this point. The only things she will be receiving are high doses of meds. They are going to increase the meds that are on her pain patch and then they will give her meds at any time she needs it or wants it. She will also have a catheter for urine. This is super because really the biggest complaint has been the mouth and throat, it being dry and sore.
So...the next step is placement. Now that all tubes are removed and only pain meds going in, nursing home placement is much easier. Once the social worker is here, we should have a better idea on where she is going. The hope all along has been that she will be able to go to the Charter House. We all sort of felt that grandma left on Friday to ensure that a spot was opened up for my mom. The one sticking point was the PEG vent, Friday afternoon was also when that was unable to be placed. So, all of you out there that think things happen for a reason...there you go!

Other news...Frankie arrived at 11:30 last night. It was dark so she couldn't see much, but has realized that fall has set in here and we are getting some very pretty trees. Once again...if things happen for a reason, I always talk about missing the changing of the season to fall the most being in AZ, so maybe she picked this time for a reason. Anyway, we sent Frankie up last night with Sandy and they hung out. Frankie and Sandy are bunking together at a place across the street. Sandy says it is very much like the Bates Hotel and if she was in any other city she may be a little nervous. However, the room is clean and quaint.
Hannah headed back to Wisconsin and Josie is back this morning doing her full body rub. And that is about all I have for right now.

Whoa...as I am typing out came the NG tube in one fell swoop! And, she is eating a Popsicle.

3 comments:

  1. Welcome to Frankie!!! Was your mom aware that she was there? What does it mean now that NG tube is out? Will the fluid once again create problems? Since IV is out what does that mean? Can you not give morphine through the IV? What was the plan, after your rounds with the doctors? Since no IV does that mean days? Is she cognizant enough for phone calls? I need guidance, please. Love you Lots, Hugs to your mom. D

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  2. Sarah, you and your sisters are incredible young women. You are a credit and tribute to your mother, who did an excellent job raising you. Way to take charge of an unimaginably difficult and complex situation. I love you all. Dad

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  3. What a wonderful tribute from your dad. I am so glad he is with you. It reminds me so much of when my ex died last year, and we all came together. He had been in my life since I was 17 and closure was so important. Thank you Joe for being there!!!!

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